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Crowdsourcing Cures App Program Director
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4 weeks agoopen0

The Crowdsourcing Cures app collects and aggregates data on symptoms, diet, sleep, exercise, weather, medication, and anything else from dozens of life-tracking apps and devices. Then it analyzes this data to reveal hidden factors exacerbating or improving symptoms of chronic illness.

https://vimeo.com/526647440

Benefits

  • Automatically identify food sensitivities 
  • Determine personalized optimal daily values for dietary intake.  
  • Quantify the effectiveness of drugs, supplements, and treatments.  
  • Calculate optimal doses of nutrients, ingredients, and other wellness factors.  
  • Determine optimal environmental parameters such as humidity, temperature, and light exposure.  
  • Determine the optimal amount of physical activity and the best forms of physical activity, intensity, and duration.  
  • Determine the optimal amount of sleep and the optimal time to go to sleep and the optimal conditions for sleep.  
  • Determine the amount of time it takes to build a tolerance to a drug and the length of the withdrawal period from the drug.

Features

  • Easily track mood, symptoms, or any outcome you want to optimize in a fraction of a second
  • Add notes with your ratings
  • Create reminders to track treatments, symptoms, emotions, diet, physical activity, and anything else that could influence your outcome of interest
  • Import your data from over 30 other apps and devices like
  • Analyze your data to identify which hidden factors are most likely to be influencing your mood or symptoms and their optimal daily values
  • View mood trends helping to identify triggers for symptoms and identify the potential effects of treatments
  • Export and email your data to your healthcare provider
  • Create and publish studies using your data or aggregated user data
  • Search for predictors and see the most significant factors influencing your conditions and their optimal daily values
  • Make informed changes and optimize your life!

Data Aggregation

The Crowdsourcing Cures Connector Framework imports and normalizes data on all quantifiable aspects of human existence (sleep, mood, medication, diet, exercise, etc.) from dozens of applications and devices including:

  • Rescuetime - Time Tracking
  • WhatPulse - Keystroke and Mouse Behaviour
  • Fitbit - Sleep Duration, Sleep Quality, Steps, Physical Activity
  • Withings - Blood Pressure, Weight, Environmental CO2 Levels, Ambient Temperature
  • Weather - Local Humidity, Cloud Cover, Temperature
  • Facebook - Social Interaction, Likes
  • Github - Code Commits
  • MyFitnessPal - Food and Nutrient Intake
  • MoodPanda - Basic Reported Mood
  • MoodScope - Detailed Reported Mood Using Panas
  • Sleep as Android - Snoring, Deep Sleep, Reported Sleep Rating
  • BodyMedia - Sleep Duration, Sleep Quality, Steps, Physical Activity
  • RunKeeper - Physical Activity
  • MyNetDiary - Food and Nutrient Intake, Vital Signs

Data Collection

Rate their symptom severity within a fraction of a second using a unique popup interface.

Data Analysis

The Crowdsourcing Cures Analytics Engine mines data using powerful, proprietary algorithms which perform temporal precedence accounting, longitudinal data aggregation, erroneous data filtering, unit conversions, ingredient tagging, and variable grouping to quantify correlations between symptoms, treatments, and other factors. 

It then pairs every combination of variables and identifies likely causal relationships using correlation mining algorithms in conjunction with a pharmacokinetic model.  The algorithms first identify the onset delay and duration of action for each hypothetical cause. It then identifies the optimal daily values for each factor.  

Platform Overview

The Vision

With the advent of mobile technologies we are all producing tremendous amounts of “digital exhaust”.  Any time we change our diet, environment, medication, exercise routine, or anything else in our daily routine we are creating a “natural experiment”.  Throughout history, man has been swimming in an ocean of naturally generated data but it has never been possible to capture and use it.  Whereas the invention of the internal combustion engine finally allowed us to exploit fossil fuels to raise the universal standard of living, new mobile technologies are allowing us to finally exploit naturally generated data to improve human existence.  There are applications and devices that allow us to effortlessly track sleep, diet, exercise, medications, symptoms, mood, environmental factors and just about anything else.

We now have the opportunity to use machine learning to solve problems that have been plaguing mankind throughout history. Our children will look back on the current era as a Dark Age where millions of people suffered needlessly because health decisions were a product of intuition and data from the mind of a single physician.  

The rules of living “the Good Life”, for thousands of years left to the speculation of philosophers, can now be derived as personal mathematical equations for the personal health and happiness of every individual. With this platform, we plan to give birth to a new quantitative scientific discipline of quantitative life optimization. 

Additional Program Coordinator responsibilities include:

  • Planning and coordination of a program and its activities
  • Ensuring implementation of policies and practices
  • Maintaining budget and tracking expenditures/transactions

Job brief

We are looking for a competent Program Coordinator to undertake a variety of administrative and program management tasks. You will help in planning and organizing programs and activities as well as carry out important operational duties.

To be an excellent program coordinator, you must be organized and detail-oriented, comfortable working with diverse teams. If you have further skills in program development and human resources support, we’d like to meet you.

The goal will be to facilitate the effective management of programs according to the organization’s standards.

Responsibilities

  • Support planning and coordination of a program and its activities
  • Ensure implementation of policies and practices
  • Maintain budget and track expenditures/transactions
  • Manage communications through media relations, social media etc.
  • Help build positive relations within the team and external parties
  • Schedule and organize meetings/events and maintain agenda
  • Ensure technology is used correctly for all operations (video conferencing, presentations etc.)
  • Prepare paperwork and order material
  • Keep updated records and create reports or proposals
  • Support growth and program development

Requirements

  • Proven experience as program coordinator or relevant position
  • Knowledge of program management and development procedures
  • Knowledge of budgeting, bookkeeping, and reporting
  • Tech-savvy, proficient in MS Office
  • Ability to work with diverse and multi-disciplinary teams
  • Excellent time-management and organizational skills
  • Outstanding verbal and written communication skills
  • Detail-oriented and efficient

Operational Guidelines

We are attempting to implement solutions that produce exponential benefits that feedback and accelerate its own progress. That is one of the primary reasons we chose to focus on improving the human mind. Better brains have the ability to find solutions to produce even better brains. This produces a snowball effect of benefits. Not only are better brains inherently good, but they are also better able to find solutions to every other global problem.

Leveraging technology

Hiring an extra researcher is great. However, we could potentially leverage new technology to automate data collection, analysis, and reporting giving us a 1000x increase in speed or 1000x decrease in cost relative to the traditional methodology.

It costs $48k per subject in Phase III clinical trials.  So there’s not a sufficient profit incentive for anyone to do research on the effects of any factor besides a molecule that can be patented. FEDMI supports the Journal of Citizen Science where this research process has been automated.  This system of crowdsourced clinical research has collected over 10 million data points on symptom severity and influencing factors from over 10,000 people. This data has been used to freely publish 90,000 studies on the effects of various treatments and food ingredients on symptom severity.

Positive Feedback Loops

  • Evolution applies positive feedback in that the more capable methods resulting from one stage of evolutionary progress are used to create the next stage.
  • As a result, the rate of progress of an evolutionary process increases exponentially over time. Over time, the “order” of the information embedded in the evolutionary process (i.e., the measure of how well the information fits a purpose, which in evolution is survival) increases.
  • A correlate of the above observation is that the “returns” of an evolutionary process (e.g., the speed, cost-effectiveness, or overall “power” of a process) increase exponentially over time.
  • In another positive feedback loop, as a particular evolutionary process (e.g., computation) becomes more effective (e.g., cost-effective), greater resources are deployed toward the further progress of that process. This results in the second level of exponential growth (i.e., the rate of exponential growth itself grows exponentially).

Positive Feedback Loops and the Brain

Moore’s Law – the scaling property that has seen revolutions in technologies ranging from supercomputers to smart phones – has largely been driven by advances in materials science. As the ability to miniaturize transistors is coming to an end, there is increasing attention on new approaches to computation, including renewed enthusiasm around the potential of neural computation.

Advances in neurotechnologies have revealed neural computation insights into broader computing applications. As we understand more about the brain, we use these discoveries to improve artificial intelligence.

Examples of brain-derived computational techniques include deep learning and neuromorphic hardware. These advancements improve our ability to learn about the brain. and accordingly can be projected to give rise to even further insights.

This positive feedback will produce exponential scaling in computing emerging from our progressive understanding of the brain.

The project coordinator must be able to apply moonshot thinking to the challenge.

Moonshot thinking is when you pick a huge problem and set out to create a radical solution to the problem. To make this happen you have to abandon the idea of creating a 10% improvement. Instead, the focus is a solution that will bring tenfold (or 10x) improvements, or solve it altogether.

1. Huge Problem: Pick a massive problem that, if solved, would positively impact the lives of millions, even billions.

2. Radical Solution: Create and propose a radical new solution to that problem that seems crazy today.

3. Breakthrough Technology: Search for breakthroughs and emerging technologies that exist today and leverage those technologies in your solution. This provides evidence that the solution (though wild-sounding today) may be possible in the future. 

6 Habits of Highly Effective Program Directors

If you do what other successful people do, over and over again, nothing in the world can stop you from eventually getting the same results that they do. And if you don’t, nothing can help you.

So what do successful organizations do differently from unsuccessful ones? In a word, leverage.

Give me a lever long enough and a fulcrum on which to place it, and I shall move the world.

Archimedes
From Forces for Good

The methods of attaining this leverage can be broken down into 6 steps.

1. Serve Individuals and Advocate on Their Behalf

Work with government and advocate for policy change

High-impact organizations don’t just focus on doing one thing well. They may start out providing great programs, but eventually, they realize that they cannot achieve systemic change through service delivery alone. So they add policy advocacy to access government resources or to change legislation, thus expanding their impact.

Other nonprofits start out doing advocacy and later add grassroots programs to supercharge their strategy. Ultimately, all of them bridge the divide between service and advocacy, and become good at doing both. And the more they advocate and serve, the greater the impact they achieve.

We serve directly by helping

– individuals collect data and discover hidden factors increasing their risk or severity of dementia or mental illness.

– companies, organizations, and researchers share anonymous data

We advocate by working with the government to

– provide resources to researchers as well as

– reducing regulations that impede data sharing, experimentation, and scientific progress.

2. Make Markets Work

Harness market forces and see business as a powerful partner

Tapping into the power of self-interest and the laws of economics is far more effective than appealing to pure altruism. Great nonprofits find ways to work with markets and help businesses “do well while doing good.”

Ways of leveraging market forces to achieve social change on a grander scale include:

  • influencing business practices
  • building corporate partnerships
  • developing earned-income ventures such as software development and data analysis services for business

We work with pharmacies, online grocers, and healthcare providers to give individuals access to their health, treatment, and diet data. We also work to provide an option for individuals to easily and anonymously share their data with the aggregated data pool to accelerate research.

3. Inspire Evangelists

Convert individual supporters into evangelists for the cause

Great nonprofits see volunteers as much more than a source of free labor or membership dues. They create meaningful ways to engage individuals in emotional experiences.

Ways We Inspire Evangelists

We reward citizen scientists for their data donations and researchers for publishing studies using this data.

4. Building Non-Profit Networks

Build and nurture nonprofit networks, treating other groups as allies

Ways We Build Non-Profit Networks
Open Source Software

We do this by creating open-source software that can be used by other research organizations to collect data and create studies.

Affiliate Organizations

We also sponsor local affiliate Crowdsourcing Cures Meetup groups. This involved bringing patients, physicians, researchers, data scientists, and programmers together to work on projects to solve challenging medical problems.

We strive for collaboration not competition. Wheel reinvention should be avoided at all costs.

5. Master the Art of Adaptation 

High-impact program directors are exceptionally adaptive, modifying their tactics as needed to increase their success. They respond to changing circumstances with one innovation after another. Mistakes and failures are an inevitable result of experimentation. But unlike ineffective nonprofits, they master the ability to listen, learn, and modify their approach based on external cues — allowing them to sustain their impact and stay relevant.

6. Share Leadership

High-impact program directors share power in order to be a stronger force for good. They distribute leadership throughout their organization and their nonprofit network — empowering others to lead. And they cultivate a strong second-in-command, build enduring teams with long tenure, and develop highly engaged boards in order to have more impact.

How We Implement These Lessons