Why is software created using taxpayers’ money not released as Free Software? We want legislation requiring that publicly financed software developed for the public sector be made publicly available under a Free and Open Source Software license. If it is public money, it should be public code as well. Code paid by the people should be available […]
Journal of Citizen Science
We publish our anonymously aggregated analyses at the Journal of Citizen Science. So far, we’ve collected over 10 million data points on symptom severity and influencing factors from over 10,000 people. This data has been used to freely publish 90,000 studies on the effects of various treatments and food ingredients on symptom severity. Mega Studies Mega […]
Crowdsourcing Cures App
The Crowdsourcing Cures app collects and aggregates data on symptoms, diet, sleep, exercise, weather, medication, and anything else from dozens of life-tracking apps and devices. Then it analyzes this data to reveal hidden factors exacerbating or improving symptoms of chronic illness.
FDA Mandate Initiative
The FDA’s primary mandate should be to maximize human health and safety and opposed to ensuring that no one ever have access to a treatment that may or may not be effective.
Open Epidemiology Initiative
The CDC should provide a simple website where one can enter any non-communicable diseases and see a correlation matrix and longitudinal chart of incidence and prevalence over time.
Standardized Clinical Trial Outcome Measures
The results from thousands of studies available in a free database at clinicaltrials.gov. However, they all use different outcome measures, so it’s difficult to aggregate the results to generate meta-analyses. Thus, it’s difficult for a patient or physician to derive the best actionable information from this disparate pile of information. Our goal is to convert […]
Outcome Labels Initiative
Data Quantity Data Sources Several types of data are used to derive the Outcome Labels:
Posthumous Health Data Donation by Default
Over a billion people are suffering from uncured chronic diseases. Medical progress is unacceptably slow due to the costs of research. However, there’s tremendous value in the information contained within health records. This data could help answer a range of public health questions that require data on people’s health over a long time period — […]
International Biobank Health Data Sharing
Numerous health conditions affecting large parts of the population remain under-researched. As a result, hundreds of millions of people continue to suffer from devasting diseases, such as Alzheimer’s dementia or Parkinson’s disease. The data required for scientific progress actually already exists in the form of electronic medical records, health insurance spending records, diet data, pharmacy […]
Microbiome Optimization Initiative
There is likely no other area of medical research with more potential for reducing the suffering of chronic disease than the billions of tiny passengers inside our guts. There is increasing evidence showing that the dynamic changes in the gut microbiota can alter brain physiology and behavior. Cognition was originally thought to be regulated only […]